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Austrian MPS Society’s Therapy Week

Austrian MPS Society’s Therapy Week

Mucopolysaccharidosis are a group of rare, inherited, and incurable diseases, and MPS Society Austria aims to help people and families living with these diseases...
Supporting patients and families with Mucopolysaccharidosis

Supporting patients and families with Mucopolysaccharidosis

Founded in 1985, MPS Austria supports children with Mucopolysaccharidosis and other similar Lysosomal diseases, and their families, by helping to increase quality of life. MPS...
Understanding MPS and other similar Lysosomal diseases

Understanding MPS and other similar Lysosomal diseases

MPS Austria wants to make everyday life easier for children with Mucopolysaccharidosis and other similar Lysosomal diseases, and their families, by supporting them with...
A spotlight on MPS Austria

A spotlight on MPS Austria

Speaking to Health Europa, Michaela Weigl, the president of MPS Austria, discusses the society’s work to support people living with mucopolysaccharidoses and to raise...
MPS disease: the health benefits of cannabinoids to MPS patients

MPS disease: the health benefits of cannabinoids to MPS patients

Over the last few decades, the health benefits of cannabinoids has become an increasingly popular topic, but can this help those with the rare...
Introducing the Narrenturm: the world’s first hospital for the mentally ill

Introducing the Narrenturm: the world’s first hospital for the mentally ill

Before the end of the 18th century, those who were mentally ill were not regarded as patients, however in 1784 Austria, the Narrenturm was...
Learn about Rare Disease Day with MPS Austria

Learn about Rare Disease Day with MPS Austria

Did you know that one in 20 people will live with a rare disease at some point in their life? 29 February 2020 marked...
Austrian MPS Society

Living with mucopolysaccharidoses: support, awareness and research

Mucopolysaccharidoses (MPS) is a group of rare, inherited, incurable metabolic diseases caused by disorders in the metabolism, in this eBook the Austrian MPS Society...
MPS

MPS Austria: champions of self-help support and research for therapy

Mucopolysaccharidoses (MPS) are slowly progressive and inheritable metabolic diseases and MPS Austria helps to improve quality of life for MPS patients. MPS diseases occur in...
MPS Therapy

Everything you need to know about the annual MPS therapy week

From 11 July to 20 July 2019, the annual MPS therapy week and bi-annual MPS Conference was hosted in Hinterglemm, in the South-East of...
Light and shadow – daily life with Mucopolysaccharide storage disorders

Light and shadow – daily life with Mucopolysaccharide storage disorders

Susanne Kircher, co-founder of the Austrian MPS Society, talks about the rare chronic diseases, mucopolysaccharide storage disorders. Mucopolysaccharide storage disorders (MPS) are rare chronic diseases,...
Exploring mucopolysaccharide storage disorders

Exploring mucopolysaccharide storage disorders

Susanne Gerit Kircher, Medical University of Vienna, argues that Europe must renew its efforts to tackle rare diseases such as mucopolysaccharide storage disorders. Mucopolysaccharide storage...
Becoming reality – mucopolysaccharide storage diseases and adulthood

Becoming reality – mucopolysaccharide storage diseases and adulthood

Susanne Gerit Kircher, of the Medical University of Vienna, explains why more resources and effort must be put into understanding mucopolysaccharide storage diseases in...
Mucopolysaccharide storage diseases and puberty and adolescence

Mucopolysaccharide storage diseases and puberty and adolescence

The Medical University of Vienna’s Susanne Gerit Kircher reflects on the medical progress that has allowed people affected by mucopolysaccharide storage diseases to start...
The Fool’s Tower: Europe’s oldest building that accommodated mental patients

The Fool’s Tower: Europe’s oldest accommodation for mental patients

Health Europa explores with those involved in managing and expanding the then-hospital for mental patients, Vienna’s Narrenturm (Fool’s Tower). In September, Health Europa travelled to...
The Swiss perspective on mucopolysaccharide disease

The Swiss perspective on mucopolysaccharide disease

Dr Fredi Wiesbauer, vice president of the Swiss Mucopolysaccharide disease (MPS) Society met with Health Europa and explored the Swiss experience of hosting such...
MPS

Understanding mucopolysaccharide storage diseases

What are mucopolysaccharide storage diseases? What are their signs and symptoms? And what treatment options are available for patients? These are just some of the...
The Austrian MPS Society’s Therapy Week – more than just therapy

The Austrian MPS Society’s Therapy Week – more than just therapy

In July, Health Europa saw first-hand how the Austrian MPS Society’s Therapy Week brings patients and their families together for more than just a...
How is MPS Austria improving understanding of mucopolysaccharidoses?

How is MPS Austria improving understanding of mucopolysaccharidoses?

Professor Dr Dr Susanne Gerit Kircher discusses her work alongside the Austrian MPS Society towards a better understanding of mucopolysaccharidoses. Speaking to Health Europa during...
Make Patients Smile: the MPS Austria Therapy Week mission

Make Patients Smile: the MPS Austria Therapy Week mission

Continuing its coverage of the MPS Austria Therapy Week, Health Europa speaks to childcare organiser Anna Prähofer about how the event has evolved since...

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