Wednesday, September 30, 2020
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Understanding rare autoinflammatory conditions during awareness month

Understanding rare autoinflammatory conditions during awareness month

September marks World Autoinflammatory Awareness Month – a time for organisations, patients, carers, and families to raise the profile of these rare and complex...
Successful treatment of patients with the autoimmune disease lupus

Successful treatment of patients with the autoimmune disease Lupus

A team of researchers have successfully treated two patients with the autoimmune disease systemic lupus erythematosus for the first time. The team from Charité -...
Alder Hey teams up with Brilliant Masks to stop spread of COVID-19

Alder Hey teams up with Brilliant Masks to stop spread of COVID-19

Clinicians at Alder Hey in Liverpool have teamed up with Brilliant Masks to design and produce a face covering that meets the highest industry...
Supporting patients and families with Mucopolysaccharidosis

Supporting patients and families with Mucopolysaccharidosis

Founded in 1985, MPS Austria supports children with Mucopolysaccharidosis and other similar Lysosomal diseases, and their families, by helping to increase quality of life. MPS...
Investigating bacterial infection outbreak in mid and west Essex

Investigating bacterial infection outbreak in mid and west Essex

An independent investigation report into the outbreak of bacterial infection in mid and west Essex. In the first months of 2019 a number of people...
Impact of COVID-19 on stroke survivors: act now to avoid disability

Impact of COVID-19 on stroke survivors: act now to avoid disability

A new report into the impact of COVID-19 on stroke survivors has found that delayed 999 calls due to concerns around COVID-19 have left...
Timely infection control prevented COVID-19 taking hold in Europe

Timely infection control prevented COVID-19 taking hold in Europe

A new study has shown that early infection control interventions such as intensive contact tracing helped to stamp out COVID-19 infections in Europe before...
Home hygiene contributing to antibiotic resistance

Home hygiene contributing to antibiotic resistance

Hygiene experts have said that poor hygiene in the home is contributing to antibiotic resistance. The Global Hygiene Council conducted a risk-based approach to home...
Study shows metyrapone effective for treating rare Cushing’s Syndrome

Study shows metyrapone effective for treating rare Cushing’s Syndrome

The first ever prospective study to test the safety and efficacy of metyrapone in patients with Cushing’s Syndrome in a real-life setting has shown...
Cutting cardiovascular risk for European patients with cholesterol drug

Cutting cardiovascular risk for European patients with cholesterol drug

The risk of damaging cardiovascular events could be minimised for European patients through the use of cholesterol drugs. A new, European study involving 18 different...
Skeletal Rare Diseases Academy launched by IOF

Skeletal Rare Diseases Academy launched by IOF

A new International Osteoporosis Foundation (IOF) initiative has been launched to support communication, educational programmes, and research advances in rare disorders of the bone. The...
long-term COVID-19 symptoms

COVID-19: 29% of doctors have treated patients with long-term symptoms

According to a survey conducted by the British Medical Association (BMA), a third of doctors have treated patients with long-term COVID-19 symptoms, including chronic...

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